JStrong

Activity

  • mitch
    Hi Jen,
    How is your brother doing? Has he had his bone marrow transplant yet? If so, hope it's going great! Unfortunately Dj's cancer came back within just a few weeks of a clean PET scan & he is actively undergoing chemo now to get him back in remission ASAP. Once in remissions again we will go to Duke University to get a bone marrow transplant. Please update when you can & praying all is well with you & your family.
    July 2013
  • mitch
    Thinking of you and wanted to check in on your brother. Hope things are going well for you both.
    February 2013
  • po18guy
    My cancer was either not eliminated by treatment, or immediately relapsed, so an autologous stem cell transplant (my cells) will not cure me. And, there is no known donor for an allogeneic transplant. So, a transplant is not an option for me. My treatment is on-going and there is no foreseeable end to it. I suppose that it may be considered cured if it is gone for 5+ years,or so, but I am not quite there yet. Anyway, there are several other treatments that I can try if this one fails.
    May 2013
  • mitch
    Hi Jen,
    Dj just finished up round six yesterday :). The hospital stay went well & the only thing going on this week is lab work & the nulasta shot tomorrow at the oncologist office. Dj's regiments of chemo are as strong as you can get according to what the doctor told us last thursday at his office before heading to the hospital. He has done great through his treatments. Has every day been great....NO! however, his attitude has been "let me get this over with, I don't have time to be sick" and he truly believes that God has healed his cancer & will tell you this. We believe in miracles! He seldom ever takes anything at all for nausia and goes about his daily life as normal as anyone could possibly go. He is an advid hunter & killed 5 deer this past deer season. He would go for his hospital stays & the next day be in the woods ready to go. He plays the guitar in church & has missed a total of two services in the past six month's & only because he was in the hospital over those weekends. We left the hospital yeterday about noon (4 days of chemo in-patient & a blood transfusion), stopped for mexican, and he was in church last night playing his guitar :). Is this "normal"? no. We've been told that most people do not do this well at all. BUT attitude is everything & with God's help...IT IS possible!! I am sure your family is just like we were....SCARED to death!! Please know that we are here for you & your family even though many miles away. Our thoughts & prayers are with you! Contact us anytime. Our next regiment of chem will be in 21 days for about 5 days in the hospital & we should finish up treatment around the middle of March. Dj plays on softball league's and plans to be well enough to play this summer. Praying for YOUR miracle....it is POSSIBLE! :)
    January 2013
  • mitch
    welcome. I'm new here too & would like to stay in touch. Tcell lymphoma is my Son's diagnosis and he is young as well (24). Currently in treatment & go to the hospital for cycle 6 on Thursday this week. Hope you're doing well today!
    January 2013
  • GregP_WN
    Hello and welcome, we are glad you found us. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, any questions you may have just post them in the questions tab and everyone will see them there and be able to help you.

    https://www.whatnext.com/conditions/cancer/non-hodgkin-lymphoma-nhl

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

    Greg P
    3x survivor
    Team WhatNext
    January 2013
  • DeanaBeana
    Hi! Welcome to the site. I hope you find it helpful. If you have questions just ask in the QUESTIONS tab. If you see any conversations that interest you. Just jump right in and join them. I hope your having a good day!
    January 2013
  • DaveWaz

    Welcome. Thank you for registering. Here are a few tips to get you started:

    1) Find other people like you. You can do this by clicking on "see more" in the "People Most Like You" box to the right.

    2) Go to our Questions page to see what's been posted, ask a question or give some advice. Here is a link to our most popular questions: http://bit.ly/MfN45w

    3) Complete your journey profile to share your experience. You can do this by clicking on "Add Experience" in the box next to your picture above.

    4) Don't forget to upload a picture!

    Thank you for being here and sharing your story. If you have any questions, please check out our FAQ or contact us.

    Best,
    Team WhatNext
    January 2013