Irish1464

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

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GregP 3X Survivor
Team WhatNext Community Mgr

I'm 66 & female. Diagnosed 3 yrs ago at "smoldering" stage. Now at stage one and about to start the CyBorD treatment (3 drugs). It is an aggressive treatment for early stage mm. Followed by stem cell transplant in a few months. Ultimate goal: remission for long time. Haven't had any significant symptoms or treatment until now.

Good morning. As I said before, it's a shame that MM isn't something that drs look for when we complain of back pain and anemia as well. As for getting a second opinion it does help but my oncologist wanted to start chemo quickly as I already had 5 compression fractures as well as lesions. Soon after treatment started I went to see the stem cell transplant dr and he agreed with the velcade & dex and both drs decided to add revlamid after I had reached a plateau at 4 months. Treatments I was receiving were the standard of care so I decided these two drs knew what they were doing. I have a heart condition as well so my cardiologist has been in the loop too. My oncologist right away did the genome test so I knew from the beginning I was one of the unlucky ones without the gene to fight this disease. But I am on maintenance chemo and my dr is happy with my status and I go to see my transplant dr in a few weeks to see what he thinks. Lucky me will also get my MMR immunization!!!
Good luck next week and hope you get good news and get started on your treatment. We here on what next are here for you!!!

Welcome! You have found a good place to learn about Multiple Myeloma. Be careful about googling because that information is very old and may not be relevant to life expectancy or how Multiple Myeloma is treated now. I have been on this journey for two years now so feel free to ask questions!

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter

Welcome to this wonderful web site. It has certainly helped me to realize I am not the only one suffering from MM and has answered a lot of questions that I didn't even know I needed answering!!! Are you going to start treatment or what is your course if treatment to be? How did u discover you have it? I keep asking this question as it took so long to diagnose me that I am trying to see if others started out with a back ache like mine and orthopedic dr never did blood test where high protein level would have shown up. Good luck and always, always ask questions. The more you know the better off you are!!

Welcome to our group! I think you'll like being able to communicate with people who are walking the same walk that you are.