Forged4ever

Hi Rich
Wow sounds like you should have many little tricks to help guide the folks thru the EC journey. I do hope all is going well with you now, what an amazing story. I have not run across someone who has run into old EC 4 times is that the case.

Can u tell us a little bit about some of your experiences? You could probably be a hero to those seeking guidance thru this insidious disease.

Rich I like Pittsburgh I got a second opinion in April 2003 at UPMC, Dr. Luketich who pioneered the laparoscopic
esophagectomy (MIE). He operated on me May 23, 2003. A total success, I was in hospital 5 days shopping downtown Pitt on day 8. I have not looked back since. I give all the praise to the Lord.

One 79 year old survivor to another

Tell us a little about yourself. So we can get to know you

I am an esophageal cancer stage III survivor of 15 years. We created the Esophageal Cancer Education Foundation www.fightec.org to help patients with their journey through this disease.

We have co-authored a book called 100 Questions and Answers about Esophageal Cancer published by Jones and Bartlett and you can get at any book store.

We have also published a book called Esophagectomy Post Surgical Guide Questions & Answers published by Authorhouse that can get at any bookstore or on our web site www.fightec.org

We have support groups that meet by conference call on a monthly basis. Patients calling in with quality of life questions and hearing how other patients have handled a specific issue. Go to www.fightec.org and click on services to get more information.

We also have a 24 hour hotline to help with quality of life questions as well. Check it out.

We also have a You Tube Channel https://www.youtube.com/channel/UCDkh7_H9BOnNASdmG4pdF0g . If you subscribe to this channel, you will receive notice each time we add a video about esophageal cancer to it.

Good luck

Bart

Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/esophagus-esophageal-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join.

http://www.whatnext.com/recruit-a-friend

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Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

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David
Founder, WhatNexter