Fashion1102

Dear Fashion- I read about your visit with the oncologist today.

I don't know if you read my profile. My face cancer was similiar to yours in some ways.

Surgery spread it, and that's for sure. Next it liked chemo and radiation. This rare incurable type of cancer is also heat activated, and lots of firemen, welders, and those activily making steel and coal coke for steel got this, besides men that used flame throwers in WW II.

They wanted me to be in an intensive care facility while they removed my eye, nose, and cheek in a year long procedure-and many patients don't have trouble with surgery spreading it as bad as I had. 4 days later-I'd have new cancers up and growing.

I so seriously didn't want to scare small children and look like a halloween monster. They said an eye patch, and the artificial skin wouldn't be that good--Whatever.

I decided that I'd smile til I couldn't. I'd eat with my family til I couldn't.

I had killer radiation, and for some reason I did well I was given the top amount of radiation-quickly. The cancers started going down---Week 4 they decided to fight back and got bigger- had the nerve to start growing again. My radiation defied radiation rules and gave me more. this was a close walk we had together.

For some reason I was meant to live, and I lived.

I treated it like a binary question, which you seem to do. Either I lived or I wouldn't live. Either I was able to get up in the morning or I couldn't. I have been able to get up in the morning. Either I ate or I couldn't. I didn't worry about shades of gray.

It was yes or no-and I tried to reduse stress that way. I didn't worry about the ifs- either I woke up or I didn't--Obviously I am still waking up.

God bless and help you, as he's helped me. You can talk to me any time you want.

Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/breast-cancer

you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you

Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
WhatNext Community Mgr.

Hi Fashion1102, thanks for following me. Love your teddy bear! If I can be of any help just ask. Aug. will be 4 yrs since diagnosis for me and I still tend to be absent minded. I did take a lot of notes and usually have to refer to them when I want to contribute to a post. You will get more posts directed towards your own profile if you add to your "journey" as you go. Let us know what is going on and this is a great place for everything from advice to just venting. It has been a life saver for me at times.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter