CyndiLou

Hi cyndilou, I read in another thread that you recently had the DIEP and was curious how you're feeling. I am scheduled for 4/30 and am interested in hearing anything you'd like to share about your experience. I'm very nervous.

Also, I read your journey and it looks like we have very similar timing as far as diagnosis & treatment goes.

Hope everything is going well and you have a speedy recovery.

Thanks CyndiLou for your answer. I agree you need to stay active. I try to run daily or do something. I am also getting my reconstruction in Nov. I thought I would enjoy the summer, my last Herceptin is July 11, 2014.

My hair is also coming back in gray (with a few silvers tossed in here and there) It wasn't gray before and I'm ready to dye it. I like bald better than fuzzy gray fur. yuck! Hoping this is only temporary...

Hi, Cyndilou...I read your post to my question - thanks so much for responding! As to the radiation, I would say my blistering started at about week 5 our of 6 and 1/2. My rad onc and his staff more or less expected this, since I am very fair skinned and have a history of sunburning easily. The most challenging part was during the last 5 days, when they were boosting my scars - once the blisters opened, it was pretty uncomfortable. They started me out using 100% aloe gelly; when the skin areas opened, I was moved to Silvadene cream twice a day, which has been used for burn care for many years. I was reassured that, once the treatments stopped, the skin would repair itself very quickly, which I found to be true...at one point, I was pretty much wide open from my breastbone all the way around to my armpit. Now, a month out of radiation, I only have a very small area right at my scar line still healing, and I have no pain. You'll want to talk to you rad onc about when you can resume your reconstruction...but I would say that they are going to want to give your skin some time to heal before sending you back to the PS. Merry Christmas, my friend!

Namaste, Christine

Question about the Vit A - so did you take it daily, once you finished your chemo or just right before surgery??

Hi CyndiLou. I hope you are recovering well from the chemo. I finished mine in May, will be on Herceptin until next Jan/Feb. Hope you're feeling good.

Hi Cyndi Lou. Welcome to What Next. There are a lot of wonderful people here. If you have any questions, please post using the question tab @ the top of the page. That way the entire network has access and you'll get a quicker response. I'm so glad you found us but sorry for the circumstances that led you here. Wishing you the best on your journey.

Hello and welcome, we are glad you found us. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, any questions you may have just post them in the questions tab and everyone will see them there and be able to help you.

https://www.whatnext.com/conditions/cancer/breast-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Greg P
3x survivor
Team WhatNext

Welcome. Thank you for registering. Here are a few tips to get you started:

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