Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.
If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.
We have an opportunity for you to make your voice heard with our partner Rare Patient Voice (www.rarepatientvoice.com) to be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.
Rare Patient Voice will send you an email inviting you to join their panel. If you don't respond you will be added to their panel. Be assured your information is only shared with Rare Patient Voice and is treated with the highest degree of confidentiality. If at any time you want to opt-out of receiving invitations to projects you can do so immediately.
If you say no you will not be added to the panel.
Thank you for joining us, if you have questions please contact us.
Greg_WN
WhatNext Community Mgr./Social Media Mgr.
5X Survivor
0
July 2020
Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.
Hi, Angelmimi! I see you're new to the web site. You have found a great resource here. There are a lot of really wonderful people on this web site - very kind, helpful, and supportive. I hope you find as much support here as I have. I bet you will. Take care.0July 2020
Welcome to this site. We are here to answer your questions, provide you with support.0July 2020
Hello, I have stage lV also. They have great drugs out there that work great. Make sure you sign up for social security disability. You will get full SS. Quit your job. If You are not on social security already They may ask you to sign up for regular social security first because disability takes a few months longer. So you will be signing up for both. It will automatically switch over to the disability where you get more money and back pay. I was lucky enough that when I signed up for Social security that woman there told me to sign up for both so I could get disability. I'll be going through a lot so just stop your job if you're working and take the disability. I wish you luck and if you need to talk email me at snowkittygayle@gmail.com.0July 2020
