AmyWedow

Hi how are you?I am keeping you in my prayers,Hope everything goes well XOXOXO

Thank you. My thoughts and prayers are with you.

Glad your surgery is behind you...Hope each day is a bit better for you post surgery, the drains are a pain but, once they are removed, you will feel much better...get plenty of rest, rent a funny movie, eat well...this too shall pass! Good luck and God bless.

Hi Amy, I am also HER 2 positive (Stage 1V). Currently doing Perjeta, Herceptin, Taxotere and Aredia (for bones). How are you doing?

I see you are stage 4 - where has your cancer spread??

Im going back to work. Ill miss one day a week for chemo and sometimes more if there are additional appts. I try hard to squeeze them all in one trip. Mayo has really been great about that. I drive 4 hours to get treatment and then 4 hours back because I wanted to be at mayo. Next week I am getting a brain mri because I've had headaches for the last 2 weeks so they want to check for blood clots. The steroid cream is for the blisters and they told me to use vani cream to keep my skin moisturized

Do you wish u had chosen a mastectomy the first go round? Im still trying to decide what to do.

Hey Amy, congrats on having your last chemo! That is wonderful. I am sure you are still feeling miserable from the effects but as soon as that clears it is time for a happy dance. I am starting to have some new side effects but nothing to serious. I am developing small blisters on my hands and feet. I have to return to school on the 19th when is your first day? Hope you feel better soon, how's your sister in law?

What's happening? I got my MRI results and after 3 chemo treatments my tumor has shrunk 5 cm. That's the good news, bad news my hair is falling out this week.

How's it going this week, any good news? I survived my first chemo. I had two days where I couldn't get off the couch, no energy but that was it, knock on wood. I am heading back to Mayo tomorrow for round 2. Do you work outside the home? I am a teacher so I am on summer break which is nice being able to begin to deal with this while I am off instead of while I have the stress of work. Hopefully your week wasn't too bad.

Sorry to hear that it came back. Mine was already infiltrating so I am looking at Mastectomy on left side, haven't decided about if I want to do right also, but probably will so I don't have to worry. I am doing chemo first also. They told me if they do it first they can see how my tumor reacts to medication. If they did it after surgery they would only be guessing and maybe giving me the wrong medication or unnecessary meds. At first they told me if it shrunk enough I may not need the mastectomy but I think they were sugar coating it. Every dr since has said it will be mastectomy. Did you know when you had your first chemo that you were allergic or did it show up after you did a couple? So far no symptoms but I've been told it builds up and may not be as good towards the end. I have 6 mo of chemo, than surgery probably in January, followed by radiation and hormone treatment. Right now I am diagnosed stage 2 my tumor is 8 cm no suspicious lymph nodes yet but that may change after surgery. I too will be on herceptin for a year. I got my diagnosis May 27 the day after my daughter, 18, graduated from high school. She is my only one. Have two grown step sons. Its nice talking with someone who has same diagnosis haven't seen to many people who do.

Hi Amy. Welcome to What Next. There are lots of great people here. If you have any questions, please use the question tab above -- that way the entire network will have ready access & you'll get a quicker response. I'm glad you found us but sorry for the circumstances that led you here. Wishing you all the best.

Hi saw that we had identical diagnosis so decided to follow you. Maybe we can talk. I am Invasive Ductal Carcinoma, HER2 +, E+, P+ age 45. Just had my first chemo yesterday. I'm participating in a clinical trial.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/breast-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Follow Us on Twitter Click Here =>http://bit.ly/XExkce
Find Us on Facebook Click Here =>http://on.fb.me/zjBAPl

GregP
3X Survivor
Team WhatNext Community Mgr.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter