tina66

Hoping all went well today.

Kathy

Hi Tina,
Been thinking about you and wondering how you are. My email address is jtsmom91500@yahoo.com and my phone number is 740-922-1061.
Praying for you daily. Kathy

Yaaayyyyyyy! and Yaaaayyyyyy! (About the radiation and the drains) Oh, I am so happy for you that you will get radiation. I was so worried that they would say more chemo. That would have been awful!
I did have a PET scan back in May before I started my chemo. They also gave me a bone scan. Did you do that before treatment started too?
I started radiation on Dec. 23. Today was my 9th treatment or dose. Not sure what to call it. So far so good.
I'm glad to hear you're healing well from your surgery. How many nodes did they take? I had 36 taken so now I am really paranoid about getting lymphadema. I have to wait until I hit my deductible to start physical therapy, which shouldn't take too long. Let me knw how yours goes, o.k.? There is an exercise/stretching class for breast cancer survivors at a place close to where I am having radiation and I am going to start that tomorrow. Really looking forward to that. I feel so much better if I keep moving.
How is work going? Is your nueropothy getting any better? Mine is just about gone, and lets see, my last chemo was Sept 24, so it took 3 1/2 months. That'll give you something to look forward to. (Although mine wasn't quite as bad as yours) :-)
That really stinks that we can't communicate outside of here. We need to try and figure out a secret code so I can tell you my phone number, lol (like the first number is 7) teeheehee
I'm glad you are doing so good. I was really worried.
Kathy

Sadly, Tina passed away yesterday morning. She was a wonderful, shining light, so strong and positive right up until the end. I feel so blessed to have been able to call her my friend, even though it was "virtually" and we lived on other sides of the country. She will be missed. Rest in peace my friend.

Hi! A mutual WN friend recommended we connect because of our shared diagnosis. Are you on herceptin and perjeta right now? How often? Your mets is in bone?
My IBC spread quite quickly and went to liver, bone, chest cavity, lymphs and both breasts. Am her2 pos. was diagnosed last November and am on adjuvant treatment now.
Where are you in California? I have a great breast place I Temecula to recommend for free wigs, pressure sleeves, support groups, yoga, etc. it is called Michelle's Place.
Hope to hear from you soon!
Janna

Hi Tina,

How are you? So sorry I dropped off the site. I was just reading through our exchange a couple of months ago. I also tried to catch up with your journey since we last talked. It seems you had surgery and are now headed to radiation. I had some issues with healing as well and it delayed radiation but it eventually resolved and I was able to start radiation. It feels like it was so long ago and I am still not a full year away from radiation! I still have the chemo/brain fog and forget to do stuff - like respond and follow up. How are things on Xeloda and neuropathy? Thinking of you! Sandy

How ya doing?

Huggs ((()))

Kathy

Hi Tina! Just wanted to say hi and I hope you are doing well. I hope you hear good news tomorrow.
I had a thought the other night. I have always had a hard time getting to sleep. Right now, I am taking Ambien. I try to not take it because I would really like to not have to take it. Well, the other night I didn't take it and laid there for hours, so I took one. My feet started to hurt. I have to wonder if they are a trigger for my neuropothy? Do you take a sleep aid? Are your feet and hands feeling any better yet?

Huggs ((()))

Kathy

Hi!

I thought I was going to lose a couple of my fingernails but they stayed on. (My 13 yr old son was really disappointed, lol) They were black, but it cleared up a few weeks after chemo. Oh, I can't imagine losing a nail. Hopefully your hands and feet will keep getting better.

I can't remember when my energy came back. I'm still a little bit in a fog, although it's getting better. I think you are so lucky that you have a job. I am sooo lazy, lol.

You will be in my thoughts and prayers tomorrow. Can you please ask your friend to let me know how you're doing when you get home?

Huggs! ((()))"s

Kathy

Hi Tina!

You have been in my thoughts and prayers. I am and will be praying that God will guide the Dr.s on Thursday, that everything will go well for you, and the chemo has done it's job and got rid of the nasty cancer. Do you mind if I ask others to pray for you? I had a ton of people praying for me, and I bet you do too. I know it helps.

I went and had my mapping done for radiation on Monday. Now I am just waiting to find out when it starts.

Is your neuropothy getting any better?

I'm excited for this weekend- it's supposed to get up into the 50's!

Huggs! ((()))'s
Kathy

Hi Tina,
Thanks for reaching out to me. When is your surgery? I had surgery with reconstruction (tram flap) in January this year followed by radiation. This past Monday, I had surgery to do the finishing touches to my reconstruction. I got my new nipples in the process! Woohoo! Let me know if you have any questions. I will follow you so I remember to check in with you! Best wishes!
Sandy

lol, noooo, it wasn't Humera, it was Lyrica. (Chemo brain) I just hope you can get relief for this.

Have a nice day! :-)

Good morning Tina! Woo hoo to you today on your last treatment!

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