mindyS

Hello Mindy,
Asking for nephew, Newly diagnosis ed on CNS Lymphoma, can you tell me about your treatment and doctors. Are there more people ? How rare is this cancer ?

MindyS. I am glad to see you are a survivor of PCNSL since 08. I was diagnosed August 2013 and have completed 4 months of methotrextate, 1 course of ARA-C and scheduled for another round of Chemo Jan 15th, which preps me for an autologous BMT; however I'm participating in a clinical trial to see if dropping counts w/o BMT works as well.

Would you please tell me how many treatments you have gone through? Is this an ongoing thing? Did you apply for SSDI? I'm looking for a future and would like to know what it will consist of. Thank you for your time. Cheryl

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, any questions you may have just post them in the questions tab and everyone will see them there and be able to help you.

https://www.whatnext.com/conditions/cancer/non-hodgkin-lymphoma-nhl

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Greg P
3x Survivor
Team WhatNext
Community Mgr.

Hi Mindy. Welcome to What Next. There are lots of great people here. Please feel free to peruse the questions section -- I bet you'd be able to offer answers to others or to ask questions of your own. I'm glad you found us but sorry for the circumstances that led you here. Wishing you the best!

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter