weldy54

Thank you for your lovely post on my wall. :-) Being misdiagnosed is the most awful thing because it delays diagnosis and proper treatment. That's what happened to me. I was symptomatic almost 10 months before I was diagnosed in the fall of 1995. Feel free to e-mail me privately and I will be glad to answer any questions I can. -Johanna

Hello and welcome, we are glad you found us. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, any questions you may have just post them in the questions tab and everyone will see them there and be able to help you.

https://www.whatnext.com/conditions/cancer/brain-and-spinal-cord-tumors-in-adults

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Greg P
3x survivor
Team WhatNext

Weldy54,
Welcome to the "What Next" family. I am an oncology nurse and I am always around to give any support to my fellow sisters and brothers of the lamp. There are many here with similar experiences willing to share their experiences and render their support to you as well. Best of luck to you, Carm RN.

Welcome. Thank you for registering. Here are a few tips to get you started:

1) Learn from people who share your diagnosis. You can do this by clicking on the "see more" in the "Who to Follow" box on the right side of this page.

2) See what other questions people like you have, ask a question or share what you have learned. Here is a link to our questions page: http://bit.ly/XrqDMt

3) Keep the WhatNext family up to date on your progress by posting updates. You can do this by clicking the "Share an Update" button on the center of this page.

4) Don't forget to upload a picture!

We look forward to helping you through your journey. If you have any questions, please refer to our help page or email us.

Best,
Your WhatNext Family