tribefan215

Tribefan215, you have certainly been through hell--not the least of it being diagnosed as a Stage IV when you started out as a Stage I! It makes me furious when I hear stories like yours (and my own--I should have been diagnosed at Stage I, but the doctor didn't do a D&C until 2 years after my first symptoms, and by then I was stage IIB--still should have been curable, but the gyn oncologist who did my hysterectomy didn't do any kind of a scan to see if it had spread, and the 19 lymph nodes he removed were all OK, so I had no chemo and just a few localized brachytherapy treatments. 8 mths later, when he finally ordered a PET/CT, I had metastases all over my abdomen). I often wonder at the lack of care doctors give. Now mine will always recur, and it's only a matter of time until chemo doesn't work anymore (or I can't stand to have any more). On a brighter note, I know a woman who was told nothing more could be done for her (after multiple surgeries/chemo, etc.), but another doctor prescribed some kind of pill (probably a hormone) that is at least preventing her cancer from getting worse, and she's still alive and feeling good most of the time after 12 years.

Hello tribefan215, and welcome.

Hi TribeFan. Welcome to What Next. There are lots of great people here. I'm also in Ohio -- down in Columbus. I notice that you are have some question as to where to treat. Although I'm not treating at The James @ OSU, they have a remarkable reputation. I'm treating at Riverside Hosp in Columbus because that's where my cancer was found during a hernia repair. Sat in the oncologist's office, swearing up and down I was getting a 2nd opinion at the James. Then I met Dr Bell. Nope, didn't need a 2nd opinion. I was good. The big thing is finding a doc you trust. I made my decision before I even knew that Dr Bell is the head of oncology @ Riverside. There are a bunch of us w/a similar diagnosis who are quite vocal. Please give a yell if any of us can help!

Welcome. Please continue to reach out to us. We are a strong courageous community.

I, too, am living with cancer as a chronic illness and was diagnosed about 3 yrs ago. Recently had 3rd recurrence and am doing chemo again! I did not have external radiation--only brachytherapy (internal radiation) after my hysterectomy. Then 3 series of chemo (on my third series now) and debulking surgery for metastisis last year. What is your adjuvant therapy? They can do so much to keep us alive now--one of my drs gave me 3-12 mths to live about 2-1/2 yrs ago, but the one I go to now said the longest he's had someone last with recurrent endometrial cancer is 12 yrs--so far (she's still alive). I keep hoping they'll come up with a cure soon. I go to Moffitt Cancer Center in Tampa, FL, and they are researching the kinds of treatments that target individual people's cancers. Unfortunately, they don't have this available yet for our kind. How are you holding up?

Hello Tribefan, I hope you are enjoying some peace on the 4th of July; my neighbors are letting off those big bombs and every time I jump! You are so young to have stage IV. I see you were diagnosed three years ago....I imagine you had a hysterectomy...May I ask what your symptoms were? I am concerned about my sisters who are 8 and 10 years older than myself. They are past menopause on occasion they say they spot so of course I get nervous. I am not sure what Stage IV means. If you would not mind educating me I would really appreciate it.

Hello,
I am an oncology/end of life nurse that specializes in gyne cancers. Welcome to the "What Next" family. If you should have any questions or concerns that you feel I might be able to help you with, please do not hesitate to ask. There are many excellent people here always willing to help in any way with the latest information or experiences to share. You are among friends….there are no strangers here. I hope you find all the information and support you seek, Carm RN.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/endometrial-uterine-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP
3X Survivor
Team WhatNext Community Mgr.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter