skootersteph

Activity

  • Fusionera
    Hi Steph,

    I wanted to check in and see how things were going. Also, just to give you a heads up, I noticed you referred to your tumor as a stage 2. I assume you meant a Grade III, as BTs are graded as opposed to being referred to in stages. Grade and stage have very different meanings.

    I hope treatment is going ok. I have MRI number 75 coming up on the 16th of June.
    June 2014
  • rhanson1975
    Hi. I was diagnosed with a Oligodendroglioma in April and my docs are idiots. They want me to wait until July for a follow up MRI to see if it has grown before we go ahead with any treatment! It's frustrating to say the least! I just wanted to wish you good luck in your journey and to let you know I'm here if you need to talk about anything!
    May 2014
  • Tommi
    Hi Steph, best of luck to you, I can understand not wanting to wait, to have it done with now. I was just diagnosed with colorectal cancer a two weeks ago and can't wait to get moving. I had my chemo port installed yesterday and go to see the radiologist tmw. Hoping to get started next Monday. I too have an MRI on Friday. I wish you the very best of luck and please feel free to vent whenever you need to! I have found this job isn't for sissies. Lol treat yourself with loving care and let others care too!
    June 2014
  • Fusionera
    Welcome, Steph! I hope you will fill in the details of your diagnosis and your journey so far so that we can help support you. I was 26 when diagnosed, so I hope I can be of assistance to you.
    May 2014
  • GregP_WN
    Hello and welcome, we are glad you found us.Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/brain-and-spinal-cord-tumors-in-adults

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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    GregP 3X Survivor
    Team WhatNext Community Mgr
    May 2014
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    May 2014