papabill

Hi papa I’ll, thank you for your kind words. I am not on therapy. I have been on 4 clinical trials, iL2 interferon and Yervoy. I am on watch and wait. I am glad you are fighting. I have fought hard. God bless, and good luck on Keytruda, which is about a million times better than any med I have been on. I don’t know why I am still here, but if I can give hope to anybody that is is as good a reason as any. Stay in touch.

Hi Papabill! Stopping by to say hi because I was thinking about you today!

Thanks for the encouragement papabill...yes, let's keep in touch. How does the Keytruda make you feel?

Waving hope your doing well

Hey Papabill, just checking to see that you are getting the melanoma / skin cancer notifications?

just checking and seeing well (reading,ha ha) if your doing well hopefully you are i go for #8 tomorrow for the keytruda infusion ,and to see how my MRI went on the brain stay strong my Friend,,Marven aka still taking a bath by myself biga17133

You have correctly added your melanoma to the diagnosis profile, good job! Let us know if we can help you with anything else.

well I go next tues for my 6 mth scan, I'm alright till a week or so before then I get nervous, o well nothing I can do about it. how you been? finally getting warm out. have you had fingernail problems mine are breaking on the corners, I think the chemo did that. well have to go talk later

you getting close for your scan? good luck

how you been? my cea was 1.9 and they said I was ned, just cysts around kidney had mri last sat. don't no the results yet but my onc told me it wasn't cancerous. so I will feel better next mon. after I find out for sure, good luck on yours coming up. keep me posted

how's it going? merry xmas and happy new year, I went and got cortisone shots in both knees my arthritis went away, I wish I would of had it done before. now I go for my ct jan 10th little nervous, my neuropathy seems the same probably wont ever get rid of that, good luck in feb for your scan talk later

its past the 11th how was your cea

speaking of chemo gifts, I hurt big time in legs, hips, knees, my left knee was already bad, but pain feels stronger I'm taken pain pills it helps but I don't want to take them all the time. i'll wait and see how long this lasts

papabill sorry I'm late in responding but good news had ct scan in july and last week both came back the same no disease finished my 12th treatment my onc talked about maintenance chemo but decided not too just have to get scan in jan. so how are you doing

Just reading your comments, Papabill. How are you doing? Have the nerves in your fingers and feet gotten better? I hope so! Thanks for the insights. God Bless You on your journey!

thanks so much for your response to my question. I am getting my port removed on Feb 8, it will be great to have it out.

Hi! I have been reading your journey and it seems we have a lot in common. A little bit different order but basically the same. I had a j-pouch constructed when they removed part of my colon and rectum. My surgeon tells me it takes about 2 years for you to tell in to your new digestive system. I have good days and bad. I have been keeping a food and bathroom diary but I can't see any patterns yet. I see it as better than the ileostomy but I wish it was better.

I ahave the numbness in my feet as well. I have found wearing lined Crocs seems to feel the best on my feet. The momen I get home and walk in the door, the Crocs go on. I leave them on until bed and then right back on in the morning. My friend got me a pair to wear at her house as well. I posted an update earlier today about how I got in the shower this morning and didn't even realize I still had a sock on my foot. All you can do is smile sometimes.

Good luck in your journey and stay in touch.

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