lindab

I'm here if you have any questions or help.

Hi Linda. Welcome to What Next. There are lots of great people here. If you have any questions, please use the question tab near the top of the page -- that way the entire network will have access & you'll get a quicker response. I'm glad you found us but sorry for the circumstances that led you here. Wishing you the best.

Hi Lindab,

I was told that the type of lung cancer that I have, NSCLC, Adenocarcinoma, Broncioaviolar, is very slow growing, which is a good thing. About 2 years before I was diagnosed with lung cancer, I had an excised breast biopsy, on the right side, with a chest X-ray. The chest X-ray showed a "shadow" in my lung. My PCP got the report and sent me to get another chest X-ray with markers, but the X-ray tech. did not put marker on me, and I did not know what exactly was required. When the X-ray report came back to my PCP, he was upset that it did not show marker. He could not determine whether the "shadow" was from swelling from surgery or lung cancer. Two years later, I had the flu or something, so went to my PCP. He had me get a chest X-ray. This time the "shadow" was still there! -- The same size, but denser! That is when everything happened quickly. I just wanted you to know that it did not change that much in 2 years, and that I must have had it for a very long time before that. So it was slow growing like I was told.

You will be going through many scans, and tests, to determine your stage, and what the best treatment for you should be. A very important step to go through, but it does takes time, so try to be patient. (It took several months of this before we found the plan that I went through.) You will be very busy going to many doctors. Once you find the team of doctors that you trust, and have a treatment plan in place, you will feel a lot better about it. Then the battle will begin to kill the cancer cells.

When you go to see your doctors, bring someone with you to take notes and listen with you. Often I found it difficult to remember everything that was said, so a 2nd set of ears and notes do help. Also, write down any questions you have for the doctor before each visit and hand the questions to the doctor at the beginning of the appointment so he/she can answer them before his/her time is up.

I hope this helps you to relax just a little. I know how scared and stressed you must be right now. I was also. Try your best to relax and focus on positive thoughts. If you can exercise, go outside to see nature, pet your favorite dog or cat, go to a funny movie, do yoga, or meditate, listen to your favorite music, etc., anything to reduce the stress. You will be able to cope better without the stress, and it will lower your blood pressure.

You are in my thoughts and prayers.

Hi Lindab,
Welcome to WhatNext. This is a great place for support. I was diagnosed with Adenocarcinoma, Lung Cancer about 3 years ago. I had my lower right lobe of my lung removed (thorocotomy) followed with chemotherapy (cisplatin and navelbine). I did not have the EGFR mutation, so I had a standard chemo. (It is good to get mutation tests done on your biopsy material if possible, for there are some new targeted chemo drugs out now that do very well on those specific mutations.) Stay strong and hopeful. If you have any questions, just ask. There are many people here who have gone through what you are going through and we are very willing to help you get through this too. Best wishes to you.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/lung-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
Team WhatNext Community Mgr

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter