kdavis11259

Hi Kim, Happy New Year, hope you are still doing great. I am still doing good, busy with holidays, family and work.
Andy

Hi Kim, how things going, you done with treatment? Hope all is well and you are feeling great.

Andy

Hey Kim, how are you doing? I am feeling pretty good and started back to work this week.

Hi Kim, how things going? Have been busy and getting bad about getting onto whatnext and keeping up with people. Hope your treatments are going well and you aren't still having nasty reactions.
Andy

Hi K, how are you doing? Any decision/solution to your Rituxin reaction? Hope you had a nice weekend.
Andy

PS - for those of us with follicular lymphoma there is a great resources http://www.lymphomasurvival.com/

These are all follicular survivors and it is very current and well researched and updated weekly with articles and links. If you want to know what is new with our disease they will know it.

Ask any question on the forum and you will get some well studied replies, very helpful.

What type of chemo are you on Kim? I was on Treanda and Rituxin. The Rituxin made my ears ring which I have to this day from time to time even though I have been off of it since September 2013.

I am talking to more people that have found the same thing, that after 3 or 4 treatments of chemo they might be in remission then but the standard practice is to go 6 rounds. What if you don't need six rounds? A PET (not just a CT) is the best way to know for sure but you would have to wait 30 to 45 days after your last treatment since the chemo will still be 'shak'n and bak'n' for 30 to 45 days after infusion.

In my case in hindsight I wish we had waited after 3 chemos and then done a PET scan. Instead we did a CT scan, saw 'shadows', which could have been dead lymph nodes but without the benefit of the contrast used in a PET we did not know for sure. So we went 6 full rounds and started radiation until my blood counts were so low we had to stop. We waited then and low and behold I was in remission - but I have always wondered if I was really in remission sooner and could have avoided more chemo and radiation all together???

Let us know how you are doing.

kdavis, I see you are newly diagnosed, and I just wanted to say it does get better. I was diagnosed with follicular lymphoma, stage 4, nine years ago. I have reached the point where follicular lymphoma is no big deal. And I am hearing from multiple sources that there is an explosion of new treatments for blood cancers. So hang in there. It does get better.

Hi K, Welcome to Whatnext, sorry you are here with us. There are a great group of people here. I just finished treatment and it helped me a lot being in touch with others going through the same things that I was experiencing.
Andy

Yes ,we are relatively close. I had all my treatments with Riverside hospital and their docs. Where are you being treated? My practice is Columbus Ocology .

Hope all goes well with chemo I know it is hard but stick with it

Glad to have you aboard.
If you are interested in doing some Nutritional Changes check out my Profile page.
Good Luck!
B

It was 1 1/2 years ago since I went into total remission. I'm fine, just had a scan, still clean. You'll do just fine.

Hi, you can send GregP a request for you and I to exchange emails if you want. I can answer more personal questions this way if you prefer.

Hi Kdavis, or should I say neighbor? I'm in Michigan just north of the border. There is a lot of good advice in here and take away with what suits you. Blessings to you during your journey, any questions, just ask, were all here for you.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter