jenleahlynn

hope the best for you Jenleahlynn.

Just read your story..I wish another 10 years too because we will be close to a cure by then,

Over 5 years after treatment! WOW! Rick and I are waiting for that milestone. Congratulations. Has time of cancer returned. Sounded like you had your plate over flowing when you were diagnosed. Good luck in the future!

Ladies, I am dealing with recurrent metastatic ACC along my neck and under and behind my right ear. No more surgery or radiation possible in that area. Right side of my mouth and face is paralyzed. Struggling with eating and swallowing. Have been on carboplatin and taxol because I guess a few ACC patients have responded to it, but I didn't seem to. Thinking of you both.

Hi Jen,
I was recently treated for ACC in my larynx. Tumor was removed and had radiation. It is still in my nerves. I am concerned that it will some day travel to my lung. Can you tell me more about your experience?

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter