ajeanWV63

Hi AjeanWV63,

How are you doing now ? I am caring for my mother who had a similar diagnosis as you and completed her treatment and currently in remission. I was curious to know if you are following any preventive steps to avoid recurrence.

MOST OVARIAN CANCER IS RECURRENT - IT IS ONE THAT IS TREATED WITH DIFFERENT CHEMO EACH TIME. OVARIAN CANCER PATIENTS ARE ALMOST ALWAYS IN AND OUT OF CHEMO. I TOO LOST MY HAIR AGAIN. MINE RETURNED ABOUT 1 YEAR OUT OF SURGERY. I HAD THE ORIGINAL ROUNDS OF CHEMO - BUT INSTEAD OF 6 TREATMENTS 3 WEEKS APART - I HAD 18 CHEMOS IN 18 WEEKS. WAS ON AVASTIN ALL THE WHILE AS A STUDY DRUG. SINCE MINE CAME BACK - I WAS TAKEN OFF AS IT DIDN'T WORK. I AM NOW ON TOPOTECAN. I WAS GETTING IT EVERY 3 WEEKS, BUT MY DOC PUT ME ON EVERY 4 WEEKS. IT ATTACKS THE BONE MARROW AND I NEEDED MORE TIME FOR MY BODY TO HEAL IN BETWEEN. I AM IN CHEMICAL REMISSION RIGHT NOW - BASED ON THE CA-125. THERE HAS BEEN NO TUMORS FOUND - AS THE DOC SAID - THEY ARE STAYING UNDER THE RADAR NOW. LOSING HAIR AGAIN I FOUND EASIER THAN THE FIRST TIME. LOOK AT IT AS A STEP IN YOUR FIGHT FOR YOUR LIFE. NO BAD HAIR DAYS.. I HAVE A PRETTY GOOD SELECTION OF SCARVES AND I FIND MOST PEOPLE REALLY ARE BUSY ENOUGH IN THEIR OWN LIVES TO CARE ABOUT HOW YOU LOOK. ONCE THE CANCER HAS RETURNED THE FIRST TIME - YOU WILL BE GOING OUT IN AND OUT OF CHEMO THE REST OF YOUR LIFE. IT IS HARD - BUT I LIVE EVERY DAY AS CLOSE TO NORMAL AS POSSIBLE. IT HELPS ME FORGET ABOUT CANCER. THE BOWEL IS A VERY NORMAL PLACE FOR IT TO RETURN. I HAD 2 MAJOR RESECTIONS OF THE LAREG AND SMALL BOWEL AND I OF THE RECTUM. THE ONLY THING BETWEEN ME AND BEING CANCER FREE IS THOSE STUBBORN CELLS THAT KEEP READJUSTING TO EACH CHEMO AND FORCING US TO TRY SOMETHING ELSE. I WILL KEEP YOU IN MY PRAYERS. REMEMBER - THERE ARE ANGELS ALL AROUND YOU FOR SUPPORT. GOD BLESS. ROSEMARY

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter