SweetSandals

Activity

  • Bug
    Hi, SweetSandals (cute name). I see you're new to the web site. You have found a great resource here. There are a lot of really wonderful people on this web site - very kind, helpful, and supportive. I hope you find as much support here as I have. I bet you will. Take care.
    January 2017
  • Nanzee
    I had to refresh my memory of taxol. There are so many "taxes" this and that..I got docetaxel along with carboplatin, six rounds. Lost all my hair, nails detached, and hands and feet are a little numb and tingly, but oddly enough, I don't think about those much now, and I'd describe my quality of life as very good. Hair came back nice and thick, nearly an inch long and drawing compliments. I had a little nausea after my first Anastrozole that went away as I was taking my dog for a walk just now. I won't know if I will have joint problems for awhile. I got a knee replacement in 2013, so I should have one pain-free knee, worst case. I think you have to be informed on all the possible side effects for legal reasons, but not obligated to have them.I just looked up herceptin to see what, besides possible heart complications, were listed, and there were many.They were probably mentioned but got lost in those early overwhelmed days right after diagnosis. My only side effect after 9 months is a runny nose (which was never mentioned in the literature. I only found out because I'm in this forum and someone else brought it up.) This is kind of stream-of-consciousness rambling inspired by your post. I would think it would be okay to have your estrogen reduced by an AI while having herceptin as I am doing, but I don't know enough about taxol to even guess. You took a very thoughtful approach to managing your cancer; I didn't. I dove in feet-first at my earliest opportunity--had my port within ten days of my first meeting with my team, and had my first chemo the next day. I have trouble remembering that I'm 74, because I don't feel like I expected to, and nobody on my team treats me like I'm an old lady. I just wanted to fight my cancer and, hopefully, die of something else when I was more ready. When I read about your Vespa I figured you were too. Another thing you mentioned, a support group, might be really worth finding. I have one, all military wives or military retired, all ages, all stages, and I found it to be very helpful. It's run by a social worker who doesn't let us dwell on the negative and keeps things moving. I often find myself thinking about what other members have said, and I don't feel alone. I'm sorry this note is so disorganized; I'm capable of better writing, but I wanted to leave something for you when you're ready for another break.
    January 2017
  • Nanzee
    I think we are meant to meet. I'm 74, got my diagnosis in March 2016. I've been through chemo first, surgery with an implant, and radiation. Lost the implant along the way to an infection, but I'm still willing to give reconstruction a try. I am HER2 positive, ER positive, not PR positive. Today, New Years Day, is the day I took my first Anastrozole pill, and I'm hoping I don't come to hate it.
    I'm also an RN. I've worked a lot of different areas, husband was military so I was flexible, and my last job was as an instructor in a nursing program. Now, after retiring and spending most of last year in treatment, I'm looking for something meaningful to do.
    So sorry about your scooter and broken leg! You sound like someone I'd like to know, even though I suspect you are on the opposite corner of the continent (I'm in western Washington on the coast). If you have any questions or thoughts to share, I'd love it if you contacted me. I'm just barely finished with active treatment and my radiation burns have healed. I will get herceptin through March and an AI for a very long time. But I consider myself done with the tough parts.
    January 2017
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    December 2016