PeaceAndPower

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  • CookiesMom
    So sorry your family isn't supporting you when you need it. I notice you just joined, so did I. Is this coming from the COVID-19 and the fact they 'refuse' to mask up, not have people into house(s) or peoples that may be working, going out, doing things with 'other' peoples? Or...just in general?

    Have you looked to finding a support group that you can get involved with? Yes, they are online and it's not easy. But those groups can be helpful at least emotionally for you. Even if it isn't specifically a group for your sub-category of 'C', there are general groups. Contact LLS and see if there's something around where you live. They might be able to help. There are support #s for many of the organizations out there to talk with people who have dealt with some of the same issues. CancerCare, LLS, American Cancer Society...just to name a few. Call your Onc. office and ask if they know of any local support groups that you might join or online sites you could find an online support group. There's 'StupidCancer' geared toward people in your age range (younger) that might help. (Just do an online search). Can't hurt to try.

    If your family won't help, put your mind on seeking a place for people that will. It will help you by giving you something to do as well as potentially/hopefully finding someone that you can talk to and share your feelings, concerns, increase your 'C' knowledge about available clinical trials, information, 'direction'.

    Don't despair. There's a lot of people out there that are willing to guide and help you. If you're comfortable, make sure to talk to your Onc. and let them know that there is no family support and you're really let down by that. Many Drs. are aware of places you can go, people you can see, there are cancer social workers (part of the palliative care = helping a survivor when they need help, whether emotionally or other with guidance, support, whatever you need. This care is not 'dying care', but helping thru the journey care). There are many that utilize and many Drs. are realizing that some of their patients need help finding the support system they need at a point in time. Don't be afraid to ask. It takes strength to be able to ask for help. You've taken the first step.

    You can do this.
    December 2020
  • Pidko1
    Hi Peace and Power. Excellent username by the way :)
    And yes I know exactly what you mean. I have had some my most lonely moments since this journey began.
    I agree and relate to everyone's posts. A lot of really good points.
    For myself I just take the support where ever and when ever I can whether it be at the doctor visits, treatment centers with other patients, medical staff and support groups like this for sure.
    I do find that a lot of people tend do stay at arms length but may be thinking and praying for you.
    I just wish people could understand how much good can come from a simple conversation and a hug or two.
    So my mentality is to keep marching forward and appreciate the support that I do get. There is always something good around the corner eventually.
    One thing is for sure. I am meeting some amazing people along the way.
    Take Care
    Mike
    November 2020
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    November 2020