JustGrateful
Activity
-
I hope you are doing okay. I have been thinking about you since it seems like our diagnosis and our journeys started about the same time. Know you have a cheerleader in your corner. I pray for you daily.0October 2020
-
You have been on my mind the past few days. I hope you are doing relatively well. Hang in there. Sometimes all we can do is take it day by day, hour by hour or even just minute by minute.0September 2020
-
Hey there. Chin up. You've got this. Just keep moving. We are all here for you.0April 2020
-
JustGrateful, my thoughts and prayers are with you. I see a lot of "don't know" so far in your story. Focus on what you do know and go from there. Don't try to eat the entire elephant right now. i hope you have a great treatment team- supportive doctors, care providers, friends and family. This is great resource. Just keep what helps and ignore what doesn't.0April 2020
-
Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.
If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.
We may have an opportunity for you to make your voice heard by allowing us to share your information with our partner Rare Patient Voice (www.rarepatientvoice.com) and be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.
For now, what is the biggest issue that you are facing? Please post what you need to know on the questions page and others will help you.
Thank you for joining us, if you have questions please contact us.
Greg_P
4X Survivor
ACS Voice of Hope0March 2020 -
Hi JustGrateful!
I am in the same boat as you. Breast Cancer stage 2A
I just had my 1st round of chemo last week. The first couple days after chemo I was tired, but pretty much myself. No nausea! I understand that everyone is different. It all depends on which drugs you're given, etc.
Listen to your body. Give it what it craves and wants. Sleep when you are tired. Eat when you feel even any kind of good way about eating something. Now is the time for you to be completely selfish. For, at least, the next year, it's all about you.
When do you start treatment? We're both pretty much noobs at this. I'm just a bit ahead of you. Do you have to do chemo? Or just radiation?
As far as having trouble sleeping, as someone who has had bouts of insomnia in the past, my favorite mental game to keep my mind occupied so that I can drift off is what I call the alphabet game. Pick a category - anything at all - movie titles, dog or cat breeds, countries, cities, actors, flowers, anything. Then you start with A, and name all of the things in that category that you can think of, then move on to the next letter.
I'll also listen to podcasts if that doesn't work.
My best to you!
Xoxox,
Pam0March 2020 -
Hi, JustGrateful. I see you're new to the web site. You have found a great resource here. There are a lot of really wonderful people on this web site - very kind, helpful, and supportive. I hope you find as much support here as I have. I bet you will. Take care.0March 2020
-
Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.
If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.
We also have an opportunity for you to make your voice heard by allowing us to share your information with our partner Rare Patient Voice (www.rarepatientvoice.com) and be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.
Your information is only shared with Rare Patient Voice and is treated with the highest degree of confidentiality. If at any time you want to opt-out of receiving invitations to projects you can do so immediately.
Thank you for joining us, if you have questions please contact us.
Greg_P
4X Survivor
ACS Voice of Hope0March 2020 -
Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.
Wishing you the best.
David
Founder, WhatNexter0March 2020