Jen27

Activity

  • carolk2222
    Hello Jen. Just saw that you commented on my cardiac cathe way back 3 months ago, Some how I missed that comment. Thank you. I go next week for an MRI of my heart so that they can see if the cardiac meds are helping. I'm scared to have this MRI, It can only be done in the closed MRI. I have only been able to do the open view MRI because of claustrophobia when I tried to do one a few years back. They assure me that I can do it with some oral med to relax me. I sure hope that they are right!
    I have an appt with an oncologist on Sept 1st. My family doc referred me. My platelet count has consistently been higher than the normal :(. I can't believe that after all of these years I am seeing an oncologist again! Didi you make it to France to the doctor? I have been wondering. You can send me a private e-mail. I would love to hear from you.
    August 2015
  • carolk2222
    Hey Jen, welcome! you found the site. Glad you joined. Carol
    May 2015
  • Erik1059
    Hi Jen, I also had Hodgkins, diagnosed 29 years ago. Did you have radiation in the chest area (known as mantle radiation)? There are a lot of late effect complications to this that myself and others are suffering through.
    May 2015
  • GregP_WN
    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.
    https://www.whatnext.com/conditions/cancer/hodgkin-disease

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

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    GregP 3X Survivor
    WhatNext Community Mgr.
    May 2015
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    May 2015