ArizonaCarolyn

Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.

If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.

We have an opportunity for you to make your voice heard with our partner Rare Patient Voice (www.rarepatientvoice.com) to be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.

Rare Patient Voice will send you an email inviting you to join their panel. If you don't respond you will be added to their panel. Be assured your information is only shared with Rare Patient Voice and is treated with the highest degree of confidentiality. If at any time you want to opt-out of receiving invitations to projects you can do so immediately.

If you say no you will not be added to the panel.

Thank you for joining us, if you have questions please contact us.

Greg_WN
WhatNext Community Mgr./Social Media Mgr.
5X Survivor

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter

Hi Carolyn. Thanks for the follow. I temporarily have been less active on the site for the last couple of months. I'm recovering from surgery and am currently dealing with a wound vac. The mass that was removed did include cancer cells, so after almost 8 years, I'm dealing with a recurrence. Won't start treatment until after my wound is healed, which is likely a couple of months. Maybe October.

I'm sorry you've joined the club. Can't imagine the back pain you are enduring. Hope you get the doctor situation straightened out. When my surgeon releases me, I should just be dealing with my medical oncologist.

Good luck. I'm glad you found us but sorry you needed to.