Welcome to WhatNext, we are sorry for your need to find us, and for your loss, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.
If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.
We have an opportunity for you to make your voice heard with our partner Rare Patient Voice (www.rarepatientvoice.com) to be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.
Rare Patient Voice will send you an email inviting you to join their panel. If you say no or don't respond to them at all you will not be added to their panel.
If you say yes be assured your information is only shared with Rare Patient Voice and is treated with the highest degree of confidentiality. If at any time you want to opt-out of receiving invitations to projects you can do so immediately.
Thank you for joining us, if you have questions please contact us.
Greg_P
4X Survivor
0
May 2020
Welcome to WhatNext, we are sorry for your need to find us, and for your loss, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.
Welcome to the site, I've found this a great place to connect with other people that are going through it too. We seem to understand what it's like better than our average family or friend. I hope you're doing well with yours.0May 2020
Hi, Traceyb. I see you're new to the web site. You have found a great resource here. There are a lot of really wonderful people on this web site - very kind, helpful, and supportive. I hope you find as much support here as I have. I bet you will. Take care.0May 2020
