TinaJacques

Hi Tina- I just saw a post you wrote probably a long time ago on a different website. I was just so shocked because your story was very similar to mine. I was diagnosed with stage 4 follicular lymphoma right after my 22nd birthday. I had treatments, two daughters, and more treatments. I had a stem cell transplant at age 26 and I turned 30 this year. I created a blog to document my SCT journey. BaldNbeautiful.weebly.com

I was wondering if you would like to chat since our stories are so similar. As you know, the majority of people who get diagnosed are in their 60s so I never thought I would find someone in a situation similar to me.

I just read your article about not having the 'good cancer' and wanted to say hi to you personally. I am a Stage IV Hodgkin's survivor, and I could not even begin to tell you how many times I heard this same thing, beginning with the doctor who diagnosed me. It was so incredibly frustrating - I wanted to say if it's so 'good', then you walk this road for me...and at one point, I actually did to a few particularly insensitive people...

You are the first person who I have heard voice this out loud besides myself...this was probably the most horrible thing I heard throughout my journey, so I can totally relate...yes, it is more treatable than many other types of cancer, but that does not make it 'good'...there is no good cancer...the treatment for this 'good' cancer almost killed me, and my body will never be the same because of long term side effects...but that's ok, because it's 'good', right? I'm not really as bitter as that sounds btw!

Anyway, your article/blog post spoke to me and I just wanted to reach out...I wish you the best of luck as you continue to fight this battle...

Thank you for your feedback on how to tell the little ones. I will make sure to mention it at my daughter's parent-teacher conference next week.

Thanks so much for your thoughts and concern. I am going in today for 3 MRI's. I hope to have answers soon.

thank you or your comments. I will keep you in my thoughts

Hi Tina and welcome, we are glad to have you with us. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, any questions you may have just post them in the questions tab and everyone will see them there and be able to help you.

https://www.whatnext.com/conditions/cancer/non-hodgkin-lymphoma-nhl

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, ite will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves.

Thanks for being with us and let me know if I can help you find any information on the site.


Greg P
3x survivor
Team WhatNext

Hi, welcome to the WhatNext forum. You'll find a lot of friendly helpful people here. If you have any questions use the QUESTIONS tab at the top of the page to post your question for everyone to see,

Welcome. Thank you for registering. Here are a few tips to get you started:

1) Find other people like you. You can do this by clicking on "see more" in the "People Most Like You" box to the right.

2) Go to our Questions page to see what's been posted, ask a question or give some advice. Here is a link to our most popular questions: http://bit.ly/MfN45w

3) Complete your journey profile to share your experience. You can do this by clicking on "Add Experience" in the box next to your picture above.

4) Don't forget to upload a picture!

Thank you for being here and sharing your story. If you have any questions, please check out our FAQ or contact us.

Best,
Team WhatNext