PaigeB

Activity

  • Grammyma
    Hi PaigeB, Sorry to hear that you're coping with carcinoid. However, take heart. I am going on my 12th year of having carcinoid tumors. I was operated on almost 12 years ago to remove the main tumor, but it had metastasized to my liver before they found the main one. Currently, I am getting injections of Sandistatin LAR Depot every 28 days. I have been through many surgeries, and had to have two sessions of chemoembolations on my liver. I am tired constantly, but have been seeing a therapist for quite awhile to deal with a lot of stuff. It is very helpful, and I recommend it. I have never been given chemo nor radiation, because my oncologist has said it isn't recommend for me. Your oncologist feels differently. I urge you to hang in there and don't give up. If I can survive this long, you can, too! Be good to yourself. Find out what you can about relaxation techniques and practice them. If possible, seek the help of a therapist. Send me a message anytime you want. Hugs and prayers to you from Grammyma
    April 2016
  • GregP_WN
    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

    Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

    Follow Us on Twitter Click Here =>http://bit.ly/XExkce Find Us on Facebook Click Here =>http://on.fb.me/zjBAPl Our Pinterest Page with Resources=>http://bit.ly/12qVtEs Follow Us On Instagram=>>http://bit.ly/1pF5yh0 Our Help Page with instructions for the site->http://bit.ly/1aR5165

    GregP 3X Survivor
    WhatNext Community Mgr.
    April 2016
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    April 2016