MarciaLynn

Hi MarciaLynn..…….We sound a lot like twins in our journey with Stage IV dlbcl. I'm 66 and was diagnosed back in June of 2015. After r-epoch I have been lucky enough to remain in remission so far. I had a clear CT the end of July. As happy as that makes me, my oncologist is still saying, "Don't take your port out yet." Ugh.

How are you handling treatment? I see you have suffered from anemia too. Have you had any blood transfusions? I had 7 transfusions of 2 units each. I thank heaven every day for people who are kind enough to donate.

Feel free to stay in touch if you like. I'm happy to answer (or try to) any questions you have. Stay strong!
Gymmom/aka Donna :-)

Hi,
Read your glowing report about your treatment at U. of M.
Wow, I was treated there 7 years ago & was appalled at my experience.
I don't want to go into all the misadventures there, but if you are interested, I can send you a more private message about what happened to me.
I have since transfered to St. Joe's Hospital system & love it.
Hope you are doing well.

You are very welcome. I had to learn this the hard way! There is a pretty good bunch of lymphoma patients at www.cancerforums.net. Full disclosure: I am a moderator over there. But, it is an international forum and lots of experience there.
Peace and Good!

Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

https://www.whatnext.com/conditions/cancer/non-hodgkin-lymphoma-nhl

There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

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GregP 3X Survivor
WhatNext Community Mgr

Hi Marcia. Welcome to What Next. There are lots of great people here. If you have any questions, please use the question tab above -- that way everyone will have access & you'll get a quicker response. Likewise, please feel free to browse questions, as your experience may be helpful to another WhatNexter. I'm glad you found us but sorry for the circumstances that led you here. Wishing you all the best.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter