Gumboil

Activity

  • carm
    Hello,
    I am an oncology/end of life nurse. Welcome to the “What Next” family. If you should have any questions or concerns that you feel that I might be able to help you with, please do not hesitate to ask. There are many excellent people here always willing to help in any way with the latest information or experiences to share. You are among friends….there are no strangers here. I hope you find all the information and support you seek, Carm RN.
    January 2014
  • GregP_WN
    Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/brain-and-spinal-cord-tumors-in-adults

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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    GregP 3X Survivor
    Team WhatNext Community Mgr
    January 2014
  • LuckyDogs
    Gumboil - sorry to read the news of your future brother in law. I was diagnosed with a grade III astrocytoma at age 37. I was fortunate and was able to have surgery, radiation and chemotherapy. I would also recommend asking about Avastin as I have seen very good results with tumor control with some 'brain' friends. You are doing the right things - support your sister - emotionally, offering to drive to treatments, making meals, building a community of friends, family and community is most likely the most effective thing you can do. The caregiver burden is another huge item that needs to be addressed. It can be overwhelming for all. One day at a time, one decision at a time, get a second opinion, remain positive, appreciate what life offers regardless of the diagnosis. Reach out for any assistance. We are all here to support and offer a shoulder and an ear.
    January 2014
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    January 2014