Deidre

Hi there
How are you?
Made it thru 2 rounds of BCG next round in May
Hugs
Mile

Hi there. I finished my six treatments a few months ago. Jan 7 they are gonna take a look see then two weeks later start round 2. I am a little worried as I am starting to feel like I did when they found the tumor. I went in for kidney stone removal and got 2 for one. Not price though ,it was more like buy one get one half off. Hope your Holidays go well and you stay healthy. I agree people need to research and pick options that wot for their life style. Hope to hear from you
Hugs
Mike

Hi. I was just diagnosed and am facing bladder removal etc. I am male, 65 and no other health problems Looking for anyone that can share experiences so that I can make decisions.

Thanks so much for your kind thoughts. I wish nothing but the best for you as well. I've tried to not let this disease control my life. Am heading to Wyoming to do some fly fishing with my brothers next week.

Hi, Deidre. All has gone well so far. I've had 5 infusions; my 6th and final will be this coming Friday, August 30. So far I've had no real side effects. After this next treatment the doctor will wait a few weeks and then do another cystoscopy to see if there has been any recurrence. I've got my fingers crossed. How have you been?

Deidre,
I am returning to this site after much delay. I am doing well and I hope this post finds you the same. We live in Tavares, FL. I welcome to hearing from you.
Karen

Deidre,

My first major surgery was 2 years ago today. They removed a cancerous tumor that had grown from the left ureter into the left kidney. They removed both of those organs along with the tumor some lymph nodes and some fatty surrounding tissue. I'm told that cancer in the ureter is also considered bladder cancer because it has the same cell structure. I started chemo in March of 2011. I just completed cycle 4 (of 6) of my 4th different chemo cocktail. The last CT scan showed some positive results (yeah!).

I'm not sure what d/t or N/V mean - help me with that (I have chemo brain). As for the appetite, you can talk to your docs about Marinol (sythetic marijauna). I tried it, but I didn't like the buzz. However, it was good for the appetite. I am currently on the "see food" diet. Docs say, "if you see food - eat it." I end up eating a lot of junk, but I need the calories. I have had some soreness in my mouth, but not ulcers. My dentist gave me a rinse that I could use. Before you use anything like this, be sure to clear it with your Oncologist.

Greg

Welcome Deidre. This is a great site. Ask questions. Many of us experience the same things that you are experiencing now. Your docs should be able to help you with all the side effects you mentioned. I've had most of them at one time or another. I've also ended up back in the hospital twice after chemo treatments. After some fluids, some antibiotics and occasionally some blood (low hemoglobin), they send me home tired (because they don't let you sleep in the hospital) but feeling much better.

Greg

Doctors do not aways get all tumors removed.I'm going for the 6th operation. cemo treatment on going. my tumors are on a fast track keep comeing back. will get them under control soon.

Hello and welcome, we are glad you found us. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, any questions you may have just post them in the questions tab and everyone will see them there and be able to help you.

https://www.whatnext.com/conditions/cancer/bladder-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Greg P
3x survivor
Team WhatNext

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