Customs1789

Congrats to you on being such a strong SURVIVOR!! THAT is my Bucket List!

I am sorry.....I don't know anything about this type of therapy. Keep positive and take care. Patti

So sorry the uglies went to your brain. Mine did too. I've suffered two brain surgeries and one targeted gamma knife radiation this year. The first surgery was to remove a golf-ball sized metastasized melanoma tumor from my right frontal lobe area, followed by targeted radiation when cancer refilled the hole. Then, about four months later, necrosis (dead cells) from the radiation caused life-threatening brain swelling, necessitating surgery number two, last October. I'm still fatigued, but functioning fairly well. I'm disorganized (uncharacteristically) but a neuropsych evaluation shows my brain functioning pretty normally, so I'm lucky, first, to be alive, and second, to have good quality of life with skiing, hiking, singing, and dancing. Ipilimumab (Yervoy) seems to be working well for me, and my docs think it crosses the blood-brain barrier, so, with luck, will keep recurrences in my brain at bay. Periodic brain MRI's have shown nothing threatening since the surgery.
I hope your brain heals and you get past any deficits caused by this harsh assault to your system. If things don't improve, I hope you find a way to snatch joy in spite of the losses and the insidious dread that hovers when we know the beast could strike again.
Constance Emerson Crooker

Hi Customs. Welcome to What Next. There are a lot of great people here. If you have any questions, please us the question tab near the top of the page -- that way the entire network will have access & you'll get a quicker response. Likewise, please feel free to browse through questions, as your experiences might be of assistance of another WhatNexter. I'm glad you found us but sorry for the circumstances that led you here. Wishing you the best.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/brain-and-spinal-cord-tumors-in-adults

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Greg P
3x Survivor
Team WhatNext
Community Mgr.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter