I have no choice here, I am insured with the hospital, I was told I do not get to choose any of my care, should I do so, I will be disqualified from their coverage, then I would have no options.
I have not been offered any medical records, when I ask for the test results I am directed to the medical records office where I have to order them and then only recieve a transcript. I have not been given the test results or allowed to view the scans or the biopsy, when I asked for my biopsy results or the results of my CT scans, head, abdomen and pelvis, rather I was directed to the medical records office again.
I have an appointment with an Oncologist and a Therasic surgeon, date to determined, however the two appointments will be staggered, when asked if the doctors knew each other or were familiar with my case, I was told that there was no way to determine that.
Note: when I was first diagnosed, 12/08/12, I was told I had a massive growth in my right lung, the diagnosis post CT scan last week, I was told I also have a growth in my right lung and a small one in my brain.
It is difficult to see which way to go here, everyone tells me to just do what ever they say, but it seem to me that "they" don't seem to focused on anyone case in particular least of all mine.
There is no one to turn to within the hospital structure, every inquiry is dead ended with no one knowing where to direct me for some direction and/or answers.
I am hoping that my experience is not the norm and that someone may have advice to straighten me out or rest my anxiety.
Thanks all and I am really happy to have found What Next.
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February 2013