spdsgrl

How are you doing? We have the same diagnosis and I have a recurrence after 2 years. Looking at Folfiri now and wondering what to expect?

Hi Spdsgrl, just checking in to see how you're doing these days.

spdsgrl Did you have problems with swallowing the Stirvaga pills? I just got them and they are too big for me, I have a bad gag reflex.

I was reading a recent comment by you and you said you've been on chemo for 4 years. I'm currently doing a lower dose chemo and I think one of the challenges will be when to stop/start treatments. I was wondering if you could share a little more about your chemo? Are you full dose, on/off for certain amounts of time, etc.

Have you tried a Complete diet change, Special Supplements, Juicing/Green Drinks to ADD to the Protocol? Might be at least worth trying at this stage. Maybe it can help slow down the growth. If you want some places to do some research on this or what I'm doing....let me know.....We are Part of the Team and have some responsibility along with the Docs....

Hi spdsgrl, "Nice" to learn my experience had some similarities to your journey and was not too atypical to perhaps others and hopefully both our posting provided some insight into what to anticipate with a reversal. It is a twisting journey with new pathways seen and lived with new changes along the way every so often to reach this new " new normal." Who can tell us what tomorrow's new normal will be like? But, at least it is better than the "bag" and certainly the dire alternative. Thanks for touching base and best of luck to both of us. Keep the faith.

Hello I saw that we have the same diagnosis and wanted to introduce myself and my story .Hello there am 48 I was diagnosed Feb. 18 with stage 3 colorectal cancer. I just finished 28 radiation treatments and a month of chemo. My tumor was too large to operate so I needed to shrink it first. I will be seeing my surgeon tomorrow to schedule my surgery and to get scoped to see how well the radiation and chemo worked on my tumor. they think I have this gene because I had no cancerous polyps and had a colonoscopy in 2006 and they think I have had this tumor for at least 6 years. So far it hasn't spread to my liver or lungs but is in my lymph system. I am a grandma of 7.My past year has been tragic April 7 I went back for my aunts services she passed from brain cancer and after the services dropped of my sister and she was struck and killed by a car .Here I am grieving have PTSD from her accident and get diagnosed days before her birthday on the 21st.My Poor mother has buried 2 children to tragic deaths my brother of HIV and my Sister being hit then months later I'm diagnosed with Cancer. I tell you what nothing has giving me more of a fighting spirit that to fight to live for myself my children and especially my MOTHER.I reached out to you we are the same age the same cancer I thought maybe we could be a good support system for one another.

HI SpdsGrl. I noticed that you have chosen to follow me. I tend to be a bit irreverent, but not in a mean way. I try to keep my sense of humor about this whole crazy thing. If there is anything I can do to help, just let me know. I see things have gotten a bit more intense for you lately -- I hope all your testing goes well. I'm also a fellow Buckeye -- I'm up in the Columbus area, but I was born in Cincinnati & raised in Dayton. Mom hails from Mt Healthy, down near you. Good luck w/everything and I am here rooting you on

Welcome to WhatNext-I am glad you found us, though not under these circumstances. I am part of the TriHealth Cancer Institute (Good Samaritan Hospital, Bethesda North Hospital and Butler County Hospital). Please let me know if I can do anything-connect you to resources in the greater Cincinnati area-I'd like to make your journey easier.