Karenhi

Hi Karenhi. Just checking in. Hope you are doing well. My last PETscan in Dec. came back all clear. Looking forward to spring! Catch you later.....:)

Hi there, thanks for the info on melatonin! Can't buy it where I live, but I can probably find it online.

I see you are my age, with IIb and hormone profile like mine - lucky old you! :-) I'm earlier in the process than you, just having chemo now, hoping for a great result such as yours!

Hi Karenhi. Just checking in. How are you doing?

Thanks for answering. I'm glad you are doing OK. The fatigue does seem to last a long time doesn't it? I had a PET scan done and it came back all clear. Even the spot on the sacrum bone is gone. Guess it's smooth sailing for a few months. Tumor markers still not normal but dropped 200 points. Will get another test in Aug. It IS getting warmer finally. I am planting a vegetable garden at a friends house this year. Haven't had a garden in probably 25 years. I am excited about it. Catch you later.....:)

Hi Karenhi....how are you doing?

Hi Karenhi, You & I have pretty similar experiences with breast cancer and we both live in Minnesota! I also had a lumpectomy, chemo (ACT), & radiation. Did you have an OncoDx test? My recurrence score was 24 (grey area), so I had to decide if I wanted to have chemo or not. I did go through chemo, and as bad as it was, my side effects were not as bad as some endured. I am on Arimidex for 5 years with about 2-1/2 years to go, and I do have a lot of joint pain. I notice it most when I'm trying to sleep around 3AM - not fun. I exercise almost every day - mostly walking. I like to jog a little, too, but that might not be so good for joints & bones. I have some osteoporosis in my spine and will have a Dexa Scan in May to see if things have gotten worse. I take a weekly 35mg Actonel to help the bones. Hope you are feeling good now. Keep us posted on what is learned from your vitamin D trial, if they tell you. BabsWon

Hi Karehi, How are you doing? I just saw your question about Zometa. The first time I had cancer and was on AI I got Zometa. I think they are going to give me something different this time, I'm not sure.
I haven't been on in a while cuz I had abdominal surgery Jan.8 and I am still recovering. Was in hospital for 12 days. I couldn't eat, was on TPN (food in an IV bag). Then incision got infected. Also the line used for TPN got infected so it reached my bloodstream. I am finishing 10 days of home IV antibiotics. I am finally feeling better.
Hope you are doing well. Catch you later......:)

Thank you for the link about the melatonin. I was going to ask the onc this next tx if we can forgo the neulasta because my WBC is sky high. I will also ask about the melatonin but I am not experiencing any neuropathy yet.

Hope you are doing well and staying warm. I am originally from Chicago so I remember cold.

I've just had one Zometa infusion so far - next one in January. The day and evening I had the first infusion I felt fine. Woke up about 3 am with severe flulike symptoms. Extreme body aches and fever for two days and wiped out for another day or two. It sounds like drinking a lot of water and taking an antihistamine before the treatment are helpful. I'll try that next time. I've been taking the anastrozole for 6 1/2 months and have found the side effects to be a little annoying but not enough to interfere with my quality of life. I think regular exercise is very beneficial. Good luck - hope all goes well for you!

Hi Karenhi, so glad surgery is behind you. Isn't it weird that oxycodone works on some pain and not others? Hope you enjoy your day tomorrow. Have you tried Aleve for shoulder pain? Sometimes over the counter stuff works better. I had round 5 of chemo and am soooooo tired. wow. Glad I only have one more to go. Catch you later....:)

Hey Karenhi, checking on you. Did you get the back surgery? If you did I hope you are feeling better already. Our lives really do become surgery and DR. appts. Oh well, as long as it gets us through and feeling better. Have a nice Thanksgiving if I don't "talk" with you by then. I am going to my cousins house for dinner, Just a few people and he said just come, don't bring nothing but yourself. I said as long as no one is sick and he said no, nobody's sick.....just mentally. lol so I said aren't we all. Should be a really interesting afternoon....lol

Hi there, was just checking in. Did you get your liver enzymes straightened out? And if so, how? I am also keeping track of my lab reports each chemo round. I like to be able to discuss these with the onc when I get there each time.
Hope you are doing well and in high spirits!

Are you OK? A little worried about you.

Haven't heard from you lately, you OK?

Hi Karenhi, just wondering if you are taking or using any new supplements that might affect the liver enzymes.

Well, I wound up not getting dressed up as a witch. Just not up to it. I stayed home and dressed up as a cancer patient insteasd....lol. Oh well, next year will be better.
Got hammered this round with severe flu-like symptoms. Still got 2 rounds to go, I'm a little worried. Least it only lasts a couple of days.
It got really cold here today, only 42 degrees during the day. But it is Nov. so its to be expected.
Hope you are well, catch you later.....:)

awww thanks for thinking of me. 4 down, 2 to go. Not bouncing back as quickly but still can't complain. I wish I could figure out how to post a picture of myself. I like the one you posted.
I feel well enough to get dressed up as a witch today for Halloween. I think I'll go visit the crew at the cancer center. I asked around and a few of them are going to dress up. catch you later.....:)

So how are you filling your time now that you don't have to go to radiation every day? Hope its with something fun......:)