Hi, I'm new here. Just starting the bile duct C journey discovered by accident on an MRCP for precancerous IPMN cysts. Now my GI doc is not even concerned about the IPMN cysts and is referring me to Mass General in MA. I am originally from Queens, NY and know MSK is great but unable to get there so hoping Mass General is OK. I also want opinions from Brighams and Womens/Dana Farber and perhaps Beth Israel. It seems this cancer is on the rare side so I don't know how much each center knows about it. I would love to go to MSK if I could.
Your journey has been hard but may have been harder at another hospital. I hope you are doing OK and hope you post back. I am praying for you. Hopefully I get a doctor as good as yours is.
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July 2015